RISE stands for ‘Recent Diagnosis and the Impact of Support on Experiences of HIV’. RISE is exploring people’s experiences of being diagnosed with HIV and the changes in their lives following their diagnosis.


To be eligible to participate in RISE you must be:

  • Aged 16 years or above.

  • Currently living in Australia.

  • Diagnosed with HIV since 2016


What's involved? Simply complete an online survey twice a year. The survey includes detailed questions about your experience of being diagnosed with HIV, and your life since then. In the first survey we will also ask you some questions about your life in the period just before you were diagnosed. The survey will take about 35–45 minutes to complete. (The follow-up surveys will be shorter.)


This survey covers the following topics:

  • Your experience of being diagnosed with HIV

  • HIV testing history

  • Experiences of telling others about having HIV

  • Use of HIV support services (including peer support)

  • HIV treatment and care

  • Well-being and quality of life

  • Social connections

  • Sex and relationships

  • Drug use

  • Expectations for the future


Your experiences are important in helping develop & improve HIV support services for the future.

Thank you for your participation.


The RISE study team.


If you have any questions, please feel free to ask us.

If you have any more questions later, please direct any inquiries to:

Brent Clifton

Project Coordinator, HIV Epidemiology and Prevention Program

Kirby Institute Level 6, Wallace Wurth Building, UNSW Sydney NSW 2052

t: +61 2 9385 9972 | f: +61 2 9385 0920 | e: [email protected] | w: kirby.unsw.edu.au